This qualitative case study aims to explore healthcare professionals’
perceptions and experiences about opportunities for leveraging health
information technology (IT), specifically mobile health apps (MHAs) to engage
patients with diabetes. This research sets itself apart from other studies
in that it looks to explore the perceptions and experiences of healthcare
professionals within the Kuwait context. Currently, the term “diabetes
self-management” (DSM) is heavily used. According to the American Diabetes
Association:
‘People with
diabetes should receive medical care from a physician-coordinated team. Such a
team may include but is not limited to physicians, nurse practitioners,
physician assistants, nurses, dietitians, pharmacists, and mental health
professionals with expertise and a special interest in diabetes. It is
essential in this collaborative and integrated team approach that individuals
with diabetes assume an active role in their care’.(1)
According to the American Association of Diabetes Educators, diabetes
self-management education (DSME) can be defined as a continuous process of
facilitating knowledge and skills required for DSM, given by medical
professionals (2). DSME aims
to encourage informed decision making and active collaboration with diabetes
team members, self-care behaviors, problem-solving and improves
clinical outcomes, health status, and quality of life (2).
Evidence suggests that chronic diseases such as diabetes are by large
self-managed by the patients or with help from their family with usually
minimal input from healthcare professionals (3). Current
trends in health focus on patient empowerment using self-management (SM) where
SM can be defined as one's capability for managing symptoms, treatment, and
lifestyle while living with a chronic disease (4), and this
reflects the emphasis on preventative methods and healthcare education rather
than focusing on disease treatments (3). Thus,
positively affecting the management of diabetes by making healthcare
professionals more aware of how to empower patients and their DSM might be
viewed as an essential concept. Medical research has shown that
reconceptualization of terminology from “compliance” to “adherence”
can improve patients’ health where the term “compliance” suggests a restricted
medical-centered model of behaviour while with “adherence,” patients have more
control in detailing their management. (5) Although
the change of terminology is minor, it reflects a crucial, paradigmatic shift
for thinking about the delivery of medical care (5).
1.1. Research
Aims to explore healthcare professionals’ perceptions and
experiences about opportunities for leveraging health information technology
From the perspectives of healthcare professionals’ caring for patients
with diabetes, this research is to:
i.
Uncover the challenges of using MHAs
to empower patients with diabetes.
ii.
Explore the opportunities of using
MHAs and their potential for DSM.
iii.
Suggest improvements needed to make
MHAs better, more engaging, and useful to the patients and healthcare
professionals.
According to the World Health Organization (WHO), the number of adult
patients with diabetes increased to 422 million in 2014 from 108 million in
1980 and the prevalence among adults above the age of 18 years has increased
from 4.7 percent to 8.5 percent in the same period (6). Thus, the
incidence of diabetes is growing at a rapid pace in middle and low-income
countries. In these countries, diabetes is the primary reason for complications
like nephropathies, blindness, cardiovascular disease, and diabetic foot
complications. In 2016, it was estimated that 1.6 million people died directly
linked to diabetes (6). Health
Information Technology (IT) has shown to play a significant role in improving
the quality of healthcare. This type of IT and especially MHAs have overcome many
geographical and organizational barriers with low and affordable costs (7). MHAs have
significantly reduced the adverse events and disease burden linked to the
spread of poverty (8).
The care and management for diabetes primarily rely on patients taking
an active role in the management of their condition. Over time, DSME can enable
patients to become their own experts (9). However,
to reach this level of controlling their blood glucose and reducing
diabetes-related complications, patients need professional support (9-12).
The role of DSM has also been emphasized via the
in-country cooperation strategy for the WHO and Kuwait 2012-2016, stating the
collaborative agenda aims to promote the concept of SM (13). In
self-care education, IT has opened new paths for communication between the
patient and his care team (14, 15). Although
many healthcare professionals recognize the role of technology in medical care,
its adoption, on the other hand, has been slow (16). Few
healthcare professionals are familiar with the role of rapidly evolving MHAs in
healthcare. For some, it is an irritating concept of patients having easy
access to electronic medical data (14, 15, 17). The
reasons for this might be the lack of time, training, and age of the healthcare
professionals (18, 19). In
contrast, some healthcare professionals find the technology useful as it saves
time (20, 21).
Although many studies have highlighted the importance of IT and MHAs in DSM,
little evidence is available about the healthcare professionals' perspectives
in their unique context in Kuwait. Specifically, this study will focus on
healthcare professionals’ perception of the enablers and barriers of MHAs in
healthcare.
This case study explores the perception and experiences of physicians
and nurses related to the opportunities for leveraging MHAs to engage patients
with DSM. A qualitative approach was thought best in this case as the
investigator looks to understand the thoughts, feelings, and experiences of the
research participants. This research focuses on the in-depth understanding of
specific individuals’ perceptions of MHAs rather than studying the general
consensus of a larger population of healthcare professionals (22). This may
be useful because it might help in uncovering rich and context-specific
findings. It is hoped that this research will aid in providing a better
understanding of the perceptions of healthcare professionals to
use MHAs for DSM and assist them in incorporating them into their
workflows.
In taking this approach the aim is to help healthcare and any related
organizations gain insight into the attitudes, behaviours, and health practices
of the healthcare professionals about the MHAs in practice. This study also
intends to highlight the barriers faced by healthcare professionals in
educating patients about DSM. Therefore, the outcome of this study might
encourage healthcare organizations and their partners to adopt relevant
technology to enable patients in their DSM with the goal of improving patients’
health and reducing long-term complications. Ultimately, this may affect the
financial burden on healthcare at a later stage.
1.2. Structure
of the Dissertation of explore healthcare professionals’
perceptions and experiences about opportunities for leveraging health
information technology
This dissertation is organized as follows: Chapter 2 discusses the
literature relevant to this area of research. Chapter 3 describes, in detail,
the research approach to this study. In Chapter 4, the findings are presented.
In Chapter 5, the discussion of the results is presented considering the
current evidence. The study concludes in Chapter 6 with recommendations that
can help inform healthcare organizations and professionals on the current
status-quo of MHA adoption as well as future approaches should be considered.