The Last Dance
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The Last Dance tenth edition
Encountering Death and Dying
L Y N N E A N N D e S P E L D E R Cabrillo College
A L B E R T L E E S T R I C K L A N D
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THE LAST DANCE: ENCOUNTERING DEATH AND DYING, TENTH EDITION
Published by McGraw-Hill Education, 2 Penn Plaza, New York, NY 10121. Copyright © 2015 , 2011, and 2009 by Lynne Ann DeSpelder and Albert Lee Strickland. All rights reserved. No part of this publication may be reproduced or distributed in any form or by any means, or stored in a database or retrieval system, without the prior written consent of McGraw-Hill Education, including, but not limited to, in any network or other electronic storage or transmission, or broadcast for distance learning.
Some ancillaries, including electronic and print components, may not be available to customers outside the United States.
This book is printed on acid-free paper.
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ISBN: 978-0-07-803546-3 MHID: 0-07-803546-5
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Library of Congress Cataloging-in-Publication Data DeSpelder, Lynne Ann, 1944- The last dance : encountering death and dying / Lynne Ann DeSpelder, Cabrillo College, Albert Lee Strickland.—Tenth edition. pages cm ISBN 978-0-07-803546-3 (alk. paper) 1. Death—Psychological aspects—Textbooks. 2. Death--Social aspects—Textbooks. I. Strickland, Albert Lee. II. Title. BF789.D4D53 2014 155.9’37—dc23 2013041273
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In memory of Coleen DeSpelder
who lived with lightness through the shadows of terminal illness
April 2, 1954—May 17, 2001
and to our parents
Bruce Erwin DeSpelder and
Dorothy Roediger DeSpelder
Luther Leander Strickland and
Bertha Wittenburg Strickland
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vii
Brief Contents
Preface xxi Prologue, by David Gordon 1
CHAPTER 1: Attitudes Toward Death: A Climate of Change 5
CHAPTER 2: Learning About Death: Socialization 49
CHAPTER 3: Perspectives on Death: Historical and Cultural 89
CHAPTER 4: Death Systems: Mortality and Society 139
CHAPTER 5: Health Care: Patients, Staff, and Institutions 175
CHAPTER 6: End-of-Life Issues and Decisions 213
CHAPTER 7: Facing Death: Living with Life-Threatening Illness 259
CHAPTER 8: Last Rites: Funerals and Body Disposition 295
CHAPTER 9: Survivors: Understanding the Experience of Loss 341
CHAPTER 10: Death in the Lives of Children and Adolescents 385
CHAPTER 11: Death in the Lives of Adults 417
CHAPTER 12: Suicide 447
CHAPTER 13: Risks, Perils, and Traumatic Death 489
CHAPTER 14: Beyond Death / After Life 531
CHAPTER 15: The Path Ahead: Personal and Social Choices 569
Epilogue, by David Gordon 599 Notes 601 Credits and Sources 671 Name Index 677 Subject Index 693
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ix
Contents
Preface xxi Prologue, by David Gordon 1
C H A P T E R 1
Attitudes Toward Death: A Climate of Change 5
Expressions of Attitudes Toward Death 6 Mass Media 6
In the News 6 Entertaining Death 8
Language 10 Music 12 Literature 15 Visual Arts 18 Humor 23
Living with Awareness of Death 25 Contemplating Mortality 26 Dimensions of Thanatology 26 Death Anxiety and Fear of Death 27 Terror Management 29
Studying Death and Dying 31 The Rise of Death Education 31 Pioneers in Death Studies 32
Factors Affecting Familiarity with Death 34 Life Expectancy and Mortality Rates 35 Causes of Death 37 Geographic Mobility and Intergenerational Contact 38 Life-Extending Technologies 40 The Internet and the Digital Age 42
Examining Assumptions 43 Death in a Cosmopolitan Society 44 Exploring Your Own Losses and Attitudes 46
Further Readings 47
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C H A P T E R 2
Learning About Death: Socialization 49
A Child’s Reasoning 50 A Mature Concept of Death 51 Understanding Death Through the Life Course 53
Infancy and Toddlerhood 57 Early Childhood 58 Middle Childhood or School-Age Period 60 Adolescence 62 Emerging Adulthood 64 Early Adulthood 64 Middle Adulthood 65 Later Adulthood 66 The Evolution of a Mature Concept of Death 66
Agents of Socialization 67 Family 68 School and Peers 69 Mass Media and Children’s Literature 72 Religion 76
Teachable Moments 76 The Death of a Companion Animal 78 The Mature Concept of Death Revisited 81 Further Readings 87
C H A P T E R 3
Perspectives on Death: Historical and Cultural 89
Traditional Cultures 92 Origin of Death 92 Names of the Dead 94 Causes of Death 95 Power of the Dead 97
Western Culture 98 The Deathbed Scene 100 Burial Customs 102
Charnel Houses 102 Memorializing the Dead 104
The Dance of Death 104
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Death Masks 106 Invisible Death? 107
Cultural Viewpoints 108 People of Native American Heritage 108 People of African Heritage 112
The LoDagaa of Northern Ghana 114 Traditions Among African Americans 116
People of Hispanic Heritage 117 Attitudes Toward Death in Mexico 118 Día de los Muertos 118
People of Asian Heritage 122 Paper Offerings 127 Ch’ing ming and O-bon Festivals 128
People of Jewish Heritage 129 People of Celtic Heritage 129 People of Arab Heritage 132 People of Oceanian Heritage 132
Mixed Plate: Cultural Diversity in Hawaii 133 Characteristics of Hawaii’s Peoples 133 Death and Local Identity 134
Death in Contemporary Multicultural Societies 136 Further Readings 137
C H A P T E R 4
Death Systems: Mortality and Society 139
Certifi cation of Death 140 The Coroner and the Medical Examiner 141 Autopsies 144 Assessing Homicide 147 Capital Punishment 150 Defi ning Death 151
Conventional Signs of Death and New Technology 153 Conceptual and Empirical Criteria 155 Four Approaches to the Defi nition and Determination of Death 157
Irreversible Loss of Flow of Vital Fluids 157 Irreversible Loss of the Soul from the Body 157 Irreversible Loss of the Capacity for Bodily Integration 159
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Irreversible Loss of the Capacity for Consciousness or Social Interaction 160
The Uniform Determination of Death Act 162
Organ Transplantation and Organ Donation 165 Medical Ethics: A Cross-Cultural Example 170 The Impact of the Death System 172 Further Readings 173
C H A P T E R 5
Health Care: Patients, Staff, and Institutions 175
Modern Health Care 176 Health Care Financing 178 Rationing Scarce Resources 180
The Caregiver-Patient Relationship 181 Disclosing a Life-Threatening Diagnosis 182 Achieving Clear Communication 183 Providing Total Care 185
Care of the Dying 185 Hospice and Palliative Care 187
The Origins of Hospice and Palliative Care 191 Challenges for Hospice and Palliative Care 192 The Future of Hospice and Palliative Care 195
Home Care 196 Social Support 198
Elder Care 199 Trauma and Emergency Care 201 Death Notifi cation 204 Caregiver Stress and Compassion Fatigue 207 A Changing Health Care System 209 Further Readings 210
C H A P T E R 6
End-of-Life Issues and Decisions 213
Principles of Medical Ethics 214 Informed Consent to Treatment 215
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Principles of Informed Consent 215 Preferences Regarding Informed Consent 217
Choosing Death 221 Withholding or Withdrawing Treatment 225 Physician-Assisted Death 226 The Rule of Double Effect 229 Euthanasia 229 Palliative Care and the Right to Die 230 Nutrition and Hydration 231 Seriously Ill Newborns 232
Advance Directives 233 Using Advance Directives 238 Advance Directives and Emergency Care 240
Inheritance: Wills, Probate, and Living Trusts 241 Wills 242
The Formally Executed Will 245 Amending or Revoking a Will 246
Probate 248 The Duties of the Executor or Administrator 248 Laws of Intestate Succession 250
Living Trusts 251
Insurance and Death Benefi ts 253 Considering End-of-Life Issues and Decisions 255 Further Readings 256
C H A P T E R 7
Facing Death: Living with Life-Threatening Illness 259
Personal and Social Meanings of Life-Threatening Illness 261 Coping with Life-Threatening Illness 263
Awareness of Dying 263 Adapting to “Living-Dying” 264 Patterns of Coping 266 Maintaining Coping Potency 269
Treatment Options and Issues 272 Surgery 275 Radiation Therapy 276 Chemotherapy 277 Alternative Therapies 277
The Placebo Effect 280 Unorthodox Treatment 281
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Pain Management 282 The Language of Pain 283 Treating Pain 283
The Dying Trajectory 286 The Social Role of the Dying Patient 289 Being with Someone Who is Dying 292 Further Readings 293
C H A P T E R 8
Last Rites: Funerals and Body Disposition 295
Psychosocial Aspects of Last Rites 298 Announcement of Death 298 Mutual Support 301 Impetus for Coping with Loss 302
Funerals in the United States 303 The Rise of Professional Funeral Services 304 Criticisms of Funeral Practices 306 New and Rediscovered Memorial Choices 309
Selecting Funeral Services 311 Funeral Service Charges 313 Comparing the Costs 314
Professional Services 314 Embalming 315 Caskets 317 Outer Burial Containers 318 Facilities and Vehicles 319 Miscellaneous Charges 319 Direct Cremations and Immediate Burials 319
Funeral and Memorial Societies 321
Body Disposition 321 Burial 324 Cremation 326 Memorialization 328 Laws Regulating Body Disposition 329
New Directions in Funerals and Body Disposition 330 Remembrance Rituals and Linking Objects 333 Making Meaningful Choices 334 Further Readings 339
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C H A P T E R 9
Survivors: Understanding the Experience of Loss 341
Bereavement, Grief, and Mourning 343 Tasks of Mourning 346 Models of Grief 347
Working Through Grief 347 Continuing Bonds with the Deceased 348 Telling the “Story”: Narrative Reconstruction 350 The Dual Process Model of Coping 351 The Two-Track Model of Bereavement 352 Toward an Integrated Model of Grief 353
The Experience of Grief 355 Mental Versus Emotional Responses 355 The Course of Grief 355 The Duration of Grief 358 Complications of Grief 359 The Mortality of Bereavement 362
Variables Infl uencing Grief 364 Survivor’s Model of the World 364
Personality 364 Cultural Context and Social Roles 365 Perceived Relationship with the Deceased 365 Values and Beliefs 367
Coping Patterns and Gender 367 Mode of Death 369
Anticipated Death 370 Sudden Death 371 Suicide 371 Homicide 372 Disaster 372
Multiple Losses and Bereavement Burnout 373 Social Support and Disenfranchised Grief 373 Unfi nished Business 375
Grief Counseling and Grief Therapy 376 Support for the Bereaved 379 Bereavement as an Opportunity for Growth 380 Further Readings 382
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C H A P T E R 1 0
Death in the Lives of Children and Adolescents 385
Experiences with Death 388 Children as Survivors of a Close Death 391
The Bereaved Child’s Experience of Grief 392 The Death of a Parent 393 The Death of a Sibling 395